At least most of the time. Usually when I can't get a post up, it means we are busy in a good way, or that there is nothing new to report. Occasionally, it will be a delay for me to wrap my brain around what is going on so I can report on it. I PROMISE, if things get BAD, we will make a way to post so you can know that we need extra prayers.
We do covet your prayers and appreciate you checking up on us and James. Thank you for all your thought prayers and good wishes.
Thursday, we enjoyed a visit from my mom and aunt. We ate lunch together in the garden, and when James warned us that he was getting drops of rain on his almost-bare head, we moved to shelter just in time to avoid a real downpour.
Love, Stephanie
Showing posts with label admin. Show all posts
Showing posts with label admin. Show all posts
Friday, April 27, 2007
Thursday, April 19, 2007
Our address
A while back, Mary asked for an address to send cards to James. I got the address from the nurses finally, but then felt uneasy publishing them on the blog. Vern agreed and suggested this option:
If you would like to send something to James (or think you would), use the comment link below and make a comment. Include your e-mail address (which I absolutely promise not to publish, since I don't want to publish my own e-mail address!) and let me know you want the address. I'll be happy to e-mail the address to you...and don't want you to feel obligated to send something just because you asked for the address.
If you comment and need me to e-mail you, please include your address, because I probably don't have it here.
Thanks for your prayers, love, support and concern about us.
Love, Stephanie
If you would like to send something to James (or think you would), use the comment link below and make a comment. Include your e-mail address (which I absolutely promise not to publish, since I don't want to publish my own e-mail address!) and let me know you want the address. I'll be happy to e-mail the address to you...and don't want you to feel obligated to send something just because you asked for the address.
If you comment and need me to e-mail you, please include your address, because I probably don't have it here.
Thanks for your prayers, love, support and concern about us.
Love, Stephanie
Saturday, March 31, 2007
So where is Daddy?
Daddy stopped at a motel a couple miles from Bloomington-Normal. He drove about 750 miles today, so that means he has about 450 miles of driving tomorrow. We are very excited! as would anyone else be if they had to stay in a hospital for a month.
There is another family here, whose son had just finished his 3 years and 3 monthes of chemo and they are pretty sure he relapsed, but they can't tell because his bone marrow cells are dead.
They have been in this hospital for six weeks and will be here much longer. Besides all that, this boy's mom, 9 year old sister and 10 month old brother are staying with him.
I should get back to Momma and James now. As Tigger would say TTFN, Ta Ta for now!
Hannah
There is another family here, whose son had just finished his 3 years and 3 monthes of chemo and they are pretty sure he relapsed, but they can't tell because his bone marrow cells are dead.
They have been in this hospital for six weeks and will be here much longer. Besides all that, this boy's mom, 9 year old sister and 10 month old brother are staying with him.
I should get back to Momma and James now. As Tigger would say TTFN, Ta Ta for now!
Hannah
Tuesday, March 27, 2007
Day 28 in the hospital
It has been four weeks since we (Owen and I) first took James to the hospital in the Duluth. Since then we have been in one hospital or another except for when we were driving down to Fairview from Duluth. This afternoon I had to double check with someone to see what day of the week it is!
The last two nights James has had trouble tolerating his g-tube feedings. He gets all gassy and tight in the tummy and it obviously hurts--a lot. Today, the oncology docs and I were talking about it and I told them that it sort of reminded me of when we first got James' tube and were trying to figure out how best to supplement his eating to make sure he got enough calories. At that point, he didn't tolerate a lot of formula, though we could use some. We finally hit a balance of using formula for his night feedings and using milk with yogurt for his boluses during the day. All this time, he seems to tolerate what breast milk he does get with no problem.
So, I asked what they thought about working with James to eat more real food by mouth first to give his digestive system a chance to work back in to eating. The two doctors thought that would be a good idea, especially since it will be important for James to eat foods by mouth during the trip down to Georgia.
Please pray that James would tolerate what he is eating (a little cantaloupe, a little yogurt, a very little cheese tortellini...plus some other things the doctors chased up for us... both freely admitting that despite the dieticians, it is awful tough to find good, healthy food in a hospital!!) and continue progressing.
Dr. Steiner, the attending physician for the last couple of days, has been on the phone with Dr. Frank Keller, an former partner of hers who is now a pediatric hematologist/oncologist at Emory in Atlanta. He is excited about taking on James ;*); Dr. Steiner is sure we will love him.
Today, I was supposed to try to make a bus ride run to Target, but that kept getting delayed because the doctors got tied up in an unplanned procedure. When all was said and done, one the NAs was able to scare up most of what we were needing. So we should be pretty well set for a while.
Earlier today I was not too hopeful about making it to Atlanta next week. While I am still not too hopeful about getting all the way to Toomsboro for a short reprieve/visit, I am more hopeful about making it to Atlanta. We'll see what the Lord has in store for us.
This morning we talked to Vern and Katie and it sounds like they are resting some today while trying to get a few things done. Vern's back is sore and all are pretty tired (can you say 'stress'?), but they are happy to be settling in. Grandpa John got off to the airport okay and should be in Duluth this evening.
Hannah is feeling a little punk today, hopefully she'll be feeling better soon.
Be sure to post a comment if you want to see photos of the crew in GA. So far we only have three!!!
Love, Stephanie
The last two nights James has had trouble tolerating his g-tube feedings. He gets all gassy and tight in the tummy and it obviously hurts--a lot. Today, the oncology docs and I were talking about it and I told them that it sort of reminded me of when we first got James' tube and were trying to figure out how best to supplement his eating to make sure he got enough calories. At that point, he didn't tolerate a lot of formula, though we could use some. We finally hit a balance of using formula for his night feedings and using milk with yogurt for his boluses during the day. All this time, he seems to tolerate what breast milk he does get with no problem.
So, I asked what they thought about working with James to eat more real food by mouth first to give his digestive system a chance to work back in to eating. The two doctors thought that would be a good idea, especially since it will be important for James to eat foods by mouth during the trip down to Georgia.
Please pray that James would tolerate what he is eating (a little cantaloupe, a little yogurt, a very little cheese tortellini...plus some other things the doctors chased up for us... both freely admitting that despite the dieticians, it is awful tough to find good, healthy food in a hospital!!) and continue progressing.
Dr. Steiner, the attending physician for the last couple of days, has been on the phone with Dr. Frank Keller, an former partner of hers who is now a pediatric hematologist/oncologist at Emory in Atlanta. He is excited about taking on James ;*); Dr. Steiner is sure we will love him.
Today, I was supposed to try to make a bus ride run to Target, but that kept getting delayed because the doctors got tied up in an unplanned procedure. When all was said and done, one the NAs was able to scare up most of what we were needing. So we should be pretty well set for a while.
Earlier today I was not too hopeful about making it to Atlanta next week. While I am still not too hopeful about getting all the way to Toomsboro for a short reprieve/visit, I am more hopeful about making it to Atlanta. We'll see what the Lord has in store for us.
This morning we talked to Vern and Katie and it sounds like they are resting some today while trying to get a few things done. Vern's back is sore and all are pretty tired (can you say 'stress'?), but they are happy to be settling in. Grandpa John got off to the airport okay and should be in Duluth this evening.
Hannah is feeling a little punk today, hopefully she'll be feeling better soon.
Be sure to post a comment if you want to see photos of the crew in GA. So far we only have three!!!
Love, Stephanie
Monday, March 5, 2007
Posts, Comments, E-mail
I sure appreciate all of you who read here and keep James in your thoughts and prayers. I'm sorry for such a long post yesterday to catch up on the weekend. Though I hope to do better, I can't make an promises ;*)..
If you want to contact me, or ask any questions about James or whatever, the best way to do that is to click on 'comments' at the end of any handy post. Your comment comes to me as sort of an e-mail. I get the comments every time I sign on to post, at a minimum. Nothing is posted as a comment until I read it and 'approve' it. Which doesn't mean that I hide comments (though I will always reserve the right to!!), but it means that if you just want me to read your note and you don't want me to post it for public viewing, I can do that--just let me know. At this point, it is hard for me to get to e-mail much, so the blog is working as a better mass communications tool for me.
If you need to contact the folks at home, just e-mail them at our regular e-mail address.
If you have any questions, please leave a comment! If you have medical expertise (M.D., R.N., parent of a child with cancer... etc.) and I'm not getting the facts right or they need some clarification, please feel free to comment with better info.
Stephanie
If you want to contact me, or ask any questions about James or whatever, the best way to do that is to click on 'comments' at the end of any handy post. Your comment comes to me as sort of an e-mail. I get the comments every time I sign on to post, at a minimum. Nothing is posted as a comment until I read it and 'approve' it. Which doesn't mean that I hide comments (though I will always reserve the right to!!), but it means that if you just want me to read your note and you don't want me to post it for public viewing, I can do that--just let me know. At this point, it is hard for me to get to e-mail much, so the blog is working as a better mass communications tool for me.
If you need to contact the folks at home, just e-mail them at our regular e-mail address.
If you have any questions, please leave a comment! If you have medical expertise (M.D., R.N., parent of a child with cancer... etc.) and I'm not getting the facts right or they need some clarification, please feel free to comment with better info.
Stephanie
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