One Big Adventure
An opportunity to log in some of the thoughts and activities of our homeschooling family of eight. We love books and good food and aspire to a Christ-centered, multi-generational, agrarian life.

Friday, August 15, 2008

A couple of prayer requests

Yesterday, James got his 'hard chemo'. It isn't hard to get (although he does have to get stuck for it), but it is hard on his little body. So are the steroids he takes for the week following.

If there will be any difficulties with this round of chemo, we wont' see them until next week sometime (Mon-Wed, more than likely). Please pray that God's will would be done... and if it is at all possible within that, that we could stay home again and James would have no difficulties. Wisdom to help in that would be good too!

We also have a cancer friend (actually I know his mom from the hospital), David North. He has suffered much since his second Bone Marrow Transplant in April 2007 and learned this week that his leukemia is back again. With a vengeance. Seventy-five percent of his bone marrow cells are leukemia and they have no more drugs to fight with. His doctor believes he has only a few weeks left.

I saw his mom yesterday in Atlanta and she said the only way she is making it is to keep her eyes on Jesus. She is a dear, gentle woman and and she loves David with all her heart. Please pray for David, Pam and the North family.

God provides

Except for our first baby, we have always used port-a-cribs. They are the perfect size--cozy for the baby and not taking up too much floor space.

Well, James is getting a little too long for his crib now. And I'm not ready to put him in a bed without rails. Last summer we were blessed with a $20, very-lightly-used crib. We have a mattress that we had used for a toddler bed. But there wasn't enough room in the bedroom.

In order to make room, we have been praying for bunk beds and one mattress (we already have one extra mattress on hand). We had hoped to purchase a second set of bunks when we moved in, but that hasn't come to pass.

This week, we got a call from a sweet friend from church. She wondered if we could use some bunk beds, with one mattress.

Now they are all set up in the girls' room and the queen sized mattress set that the little girls have been using are leaning against the wall, waiting to go to their new home tomorrow.

Then we will pull down the crib and mattress and James will have a bed he fits in.

God is so good!

Friday, August 8, 2008

Lost

Last week, James dropped my cell phone into a cup of water. It didn't make it. He bought me a new one, but I have lost all my phone numbers.

One of my new projects is to work on recreating a paper copy of my phone list. I have been surprised how lost I have felt without my phone and programmed phone numbers.

Thursday, August 7, 2008

Groanings too deep for words

In the evening, we generally have a time of family fellowship and worship. We sing--usually hymns--we share stories, read a chapter of the Bible and answer questions (right now we are working through _Balancing the Sword_), share more thoughts and stories and then we pray together. Most of the time, Vern prays. Some of the time we 'pray around' and everyone has a turn.

Tonight, we prayed around and James decided he wanted a turn. He was sitting on the couch beside me and he folded himself over, as only James can, into a sort of seated prostrate position. And he prayed. "Mmmmm." "Mm mmm." "Mmm mmm." We all smiled at each other and yet we were respectful of James praying, so it was a quick smile and we kept our heads bowed. When James sat up and looked at Katie, we thought he was done. So, Katie started to pray. Then James signed to stop and he folded himself over again, and prayed.

"Mmmmm." "Mm mmm mmmm." " Mmmmm mm mmmm mmmmm." "Mmmm." [Giggle, giggle] "Mmmm mmm mmmm." [Chortle, snort, giggle] "Mm mmm mmmm mm." [Giggle, chuckle, chortle, snort] "Mmm mmmm mmmm." "Mmm mm mmmm." [Chortle, snort, chortle, giggle, giggle... stern looks from Daddy... deep breaths] "Mmm mmm mmm."

Then James sat up again. He looked at Katie, who was waiting patiently. We each took turns coaching James to sign to Katie that it was her turn. When Katie signed and said, "Your turn", James apparently misunderstood it was what he was supposed to say to her and he folded himself over again and "Mmmm....."

[Bbbwwwaaaah ha ha ha haaaaa.]

The trouble with the church

This evening while we were getting ready for supper and welcoming Vern home, we looked outside to see a couple of the hens poised, like they were either ready for a fight or finishing one up. One of the hens was a White Rock, the other was a golden-colored Buff Orpington. It was a tense moment and they were maintaining the pecking order.

Then one of the children said, "Momma, the chickens are fighting...or they were... they're done now... they were different denominations."

July

It seems already that July is a distant memory. Vern is back to work teaching high school math and Georgia summer heat is in full force.


When we headed to Minnesota back in 2000, the last thing we did before leaving Georgia was to celebrate the Fourth of July with the community here (where we are currently living). It was a good old-time celebration. Whenever we would read aloud the account of a Fourth of July celebration (say in the Little House books, for example), we would remember our Georgia Fourth of July.


In a very very small way, we tried to recreate the memory.... we didn't really come close... we couldn't... but it was our inspiration and at the end of the day after our little private fireworks display we would say, "Next year in Toomsboro!"

So we were sure to be in Toomsboro for the Fourth of July, and we were not disappointed! It was a beautiful day. There was lots of visiting, some softball and whiffle ball--James got to hit a ball and 'run' to first base. The food was excellent--low country boil, and ice cream for dessert. The grand finale was the fireworks. Every year, the hosts get permission from the sheriff to have a private fireworks display and this one was the best yet. The young men work together with one of the Dad's to run the show and Owen is very much looking forward to being 13 next summer so he can help!

The early parts of July were dedicated to getting ready for our trip--sewing, planning and finishing up little projects around our homestead.

Last November, Vern's mom celebrated her 90th birthday. We had hoped to be there with her, but James ended up with a line infection and we had to cancel our plans at the last minute. We rescheduled, finally, for summer and hoped that gas prices wouldn't get too high. We left July 11th an drove for three days to Minneapolis. On the way, we passed the Gateway Arch in St Louis. The children were impressed and I described to them my spotty memories of riding up into the arch years ago when my family was travelling across country (returning home to California from a visit to see my grandmother in Ithaca, NY). As we drove north, we marvelled at the marks on buildings and trees indicating how high the flood waters had come earlier in the spring. It took us a full three days to get to Grandma's and we enjoyed nearly four days of just be with her and visiting.

We had to make a detour to Fairview to say 'hi' to the folks that had taken good care of us last year in March and April. Without them, we would not have made our way safely to Georgia as soon as we did. We had not, however, planned a visit. So one was 'planned' for us! At the time, it was more disconcerting than humorous, but in the end all was well and we shook our heads at the comedy of errors.

The week of our visit, a local grocery store had a special on grapes and each day, Vern's sister stopped to pick up free grapes and brought them over to Grandma's. The children enjoyed them and on Wednesday I cut some up for James. He enjoyed them before lunch. For dessert at lunchtime James enjoyed red jello (I bet you can see where this is going). After lunch, unbeknownst to me, Vern, Becca and Carrie (at least) also gave James grapes. These grapes were not cut...at least not most of them. About suppertime, James was acting like he had really bad tummy cramps. This is not normal, he usually has a very high pain tolerance and most of his fussing occurs when he isn't getting his way. But this was different, we could tell he was in pain. He passed some grape skins and then it seemed the pain got worse and then he passed what looked like bloody mucous into his ostomy bag. We tried tylenol, but that didn't give him any relief, so we called his oncologist. The on-call doctor suggested giving him hydrocodone. If that worked through the night, we would call and re-evaluate in the morning. If he had breakthrough pain, we would go to the ER. So, we went to the ER.

Everyone there was pretty concerned too. The ER doc decided she wanted to admit James and then did a stool culture. We were grateful and relieved that whatever it was, it wasn't blood. Then we started to feel a little funny when we decided with the RN that it looked remarkably like melted jello. Of course, this still didn't explain James' discomfort or his vomiting, so we were getting ready for a room. James got an IV and fluid in the ER and more fluid when we got up to the floor. We were grateful to have familiar nurses and I was impressed that they still had James' primary care nurse list for continuity. After our early morning nap, James passed a large clump of skins and undigested grapes. We could see the relief on his face and his appetite went through the roof. He ate and drank and ate and drank all day long.

The really neat thing about all this was that the doctors and nurses, who had only seen James at his worst, got to see the incredible improvement and they were so excited. He wasn't eating at all when we were there last year nor was he walking and they got to see him now... with hair and not on steroids!




Since were so close to norther Minnesota we headed up to spend some time with friends and see what we left behind nearly a year and a half ago. We did visit the Farmers' Market, which moved from the old Wal-mart parking lot to downtown. We were able to see James' pediatrician, who was thrilled with how well he is doing. It was good to see her too, with her two children. We spent a good deal of time with Grandpa John and Grandma Nan and had some time with them on the lake. I got up on water skis for the first time in some 23 years or so and it was much harder work than I remember it being back then! We could not have made the trip up to Grand Rapids with the generosity of Grandpa John and Grandma Nan who opened their cabin on the lake to us for free lodging! Thanks John and Nan!


While we were glad to see a couple of families and some other friends, our time seemed so short as there were many folks we had hoped to see and didn't. All the more reason to look forward to heaven, in case we don't get to make another trip back.


We left MN in the wee hours of a Monday morning and headed for the Cincinnati, Ohio area. We have followed the construction and preparation of the new Creation Museum in Petersburg, KY from the beginning and we have been itching to get inside and see it since it opened last Memorial Day weekend. We were able to spend part of two days there enjoying the museum, the gardens outside and the wonderful bookstore. No matter where you stand on the issue, we recommend a visit. It can be mind-stretching :*).

From the museum, we drove to my mom's (who was visiting friends in California) and we stayed at her place (thanks Mom!! and Aunt Frannie!!) so we could easily make the drive in to Atlanta for James' visit with Dr. Keller, who was also very pleased with how well James is doing. He said something about James being 'memorable' ;*)... we are glad to be less memorable these days, as long as we don't eat too many grapes.

Love, Stephanie

P.S. I have no photos of our trip, but we have lots of great memories.

Friday, June 27, 2008

Grateful

We have had a very busy and blessed month this June. We have so many BIG things to be grateful for in addition to all the little, everyday things.

James...
...continues to do well. His counts continue to be good, but not too good, and the side effects from his chemo seem to be relatively minimal. Developmentally, he is moving along in a number of ways. He LOVES to help and he seems to really like order (not that he is always orderly, but he seems to prefer things to be more orderly rather that more chaotic!). His two favorite things to help with are laundry and emptying the dishwasher. He is really good at putting away the serving forks and spoons and the forks and knives. He does get confused with the spoons. We think this is because there are two places for spoons--they are separated by teaspoons and soup spoons--and he doesn't yet have a concept of the difference between 'big' spoons and 'little' spoons. He also likes to help put laundry into the washer (it's a front loader--yes, we really like it) and to take it out and put it in a basket to go out to the clothesline.

A few days ago, I was working in the livingroom and needed something from the diningroom. I was on my knees on the floor, so I looked around to see who was close by that could bring me what I needed with less effort than would be required to get up and get it myself (in other words, I was being lazy). James was the only child nearby and I was so glad to see a positive teaching opportunity! (then I didn't feel so bad about being lazy). I told James what I needed and asked him if he could get it for me. He said, "Mm," with a quick nod and swaggered off with purpose. He went straight for the item in need, picked up and swaggered back, delivering it with a definite pride and sense of purpose! I was tickled. He never ceases to amaze and he is such a delight to watch. I love to see him discover things that I wondered if he would ever do or notice.

The Homestead

During the past month, my dad offered to contribute enough to allow us to purchase the siding for the outside of our house (it has been wrapped in various brands of 'Tyvek-type' paper). It wasn't long before the siding was delivered and a local friend/builder sent his crew over to get the first side of the house finished (our friend and my dad have both been concerned about this 'weather' side of the house not being finished). Vern and Owen worked along with David's crew and learned a great deal. They have been able to finish the front porch (it looks GREAT!) They plan to keep working their way around the house doing all they can to get all the siding up. Having siding makes a very pleasant difference in the way the house looks. We are very grateful!

Not long after the siding got started, it was time to slaughter chickens. It's not the prettiest homesteading event of the year, but it is worth it! We really like knowing where and how our food was grown and processed.

Friends came to help and to learn and we were so very grateful they did. We got an early start to the morning and about 2-1/2 hours into the day, Vern sliced his finger sharpening his already-quite-sharp filet knife. It was a pretty deep cut. I had the worst time looking at it. With all we have been through with James, I thought perhaps I could handle it, but, alas, I have not arrived. Once I finally scraped myself up off the bed (thankfully, I didn't hit the floor, though it was close), we decided that we could leave Phillip in charge, with all the children helping and I would take Vern to the Urgent Care clinic. We tried to get into a doctor's office, but no one had space and we considered the ER as well.

The rest of the helpers and learners arrived while we were gone and everyone dove in to help. Vern was out of commission for the rest of the day (with four stitches, and instructions not to get his finger--left index) wet. We had planned to do a record 150 chickens and there was no way we could have made it without all the help! It was a longer day than we had hoped, but ended up being an immersion experience. We are very grateful to have friends who stick by us in a crisis!

My aunt lives just down the road from my mom, about 3 hours north of here. She and her husband have lived the rural life for some 40 years or so and there place is an inspiration. My aunt and my mom are both great with landscaping and if that talent is passed along genetically, you would never know it by looking at the yards we have had over the years. My aunt realized that she very much needed to divide some of her many plants this year and she was planning to toss the divisions into the woods, until she thought of me! (Hallelujah!) She mentioned her intentions of dividing plants to my mom and wondered if I could use them. My mom offered to provide all the 'filler' to complete the project and she provided lattice to provide the 'backdrop' under the front porch, some of the more 'evergreen' shrubs, soaker hose to make watering MUCH easier, some supplemental dirt and pine straw for mulch.

Then they dug up everything, loaded up my aunt's SUV (to the point that my uncle teased that it looked like the lead car in a funeral procession) and drove down to our place. They arrived Wed afternoon, emptied the car and arranged the plants. Early Thursday morning we set to work in the shade and for nearly three and a half hours we dug, planted, watered and mulched. We were all pretty excited to see the transformation and are glad to have some green life in front of the house. Now I have to take really good care of it all (green thumb that I am not). If I pass this test, they said they would bring more cuttings, divisions and volunteers in the Fall!) I am hopeful that they have made it easy enough for me to be successful!

Lord willing, I have the beginnings of a heritage here that I can pass along to my children when they begin their homes. I am grateful for the heritage of beauty I have and for a very thoughtful and generous mom and aunt.

Love, Stephanie

Saturday, June 7, 2008

Another one bites the dust

I have never been great with cameras. I do like pictures, but it seems to me that whenever I really want pictures, the camera (whichever one we happen to have at the time) doesn't want to play. I remember three birthdays in row for Katie that the camera broke just before or during her day.

Two Christmases ago, we received a wonderful digital camera from dear friends. I loved that camera. It worked so well. Until the fateful day I bumped it with my elbow and it ended up in Hannah's cup of gatorade. Sigh.

After a time, we replaced that camera with a cheaper model. The camera had an incredible delay which meant if anything was going on, we usually missed the shot we were trying for. But we did get some good photos and it was fine for more panoramic, minimal action shots.

The children loved to use it.

Hmmm.

Well, one of the children (who shall remain unnamed), took the camera to get pictures of something cute the kittens were doing outside. And dropped the camera. Now it takes Amish-style photos. You can see there is a face in the picture, sort of, but there are no features.

I find I am savoring moments of watching the children more again, since I can't jump up (or send one of the children) to get the camera so I can take a picture.

I think that is a good thing.

Love, Stephanie

Saturday, May 31, 2008

Pray for our little cancer friends

We have a couple of little cancer friends who are in particular need of prayer right now:

Hannah Cate has Down syndrome and is being treated for bi-lineage leukemia (AML/ALL). She is undergoing a particularly difficult part of treatment for the next 3 to 4 weeks and is in the hospital with very low counts and terrible mouth sores that are preventing her from eating and drinking. She REALLY wants to go home (she is also one of six homeschooled children), but can't until her counts get better and she can eat and drink on her own.

Ricky James III is a little boy whose family we fished with at Camp Sunshine back in March. He was initially diagnosed with Rhabdosarcoma last April 1st. When we met him, he had recently completed treatment and this past week they learned that the cancer has come back. He started his new treatment yesterday. His third birthday is tomorrow.

Thanks praying friends. You bless our socks off! Have a wonderful, restful Lord's day... and Happy June!

Love, Stephanie and the crew

Thursday, May 29, 2008

Counts and chemo at home

Yesterday was Vern's last day of teacher post-planning at work and this morning he was up and at our lengthy summer to-do list. He had Owen in tow most of the time and the little girls some of the time. Katie ran the house and Hannah and I bugged out with James. His g-tube looked so good this morning (still healing, definitely better even than yesterday morning, PTL, and certainly not as bad as it was earlier in the week, again PTL!) that we decided to take him to Macon for counts. This is a FIRST! The first chemo the week following steroids that we are HOME.

Okay, maybe that's a little over the top... but only a very little ;*)...

James' counts are WBC- 6.34; Hgb- 9.7; platelets 299K; ANC- 4,000+. So chemo goes as scheduled.

On the way to Macon this morning, Hannah and I were talking about the impressive turn around in James' g-tube site and we both think that several things factor in... 1st all the prayer and with that the mercy and wisdom for the rest of the factors ;*); James has been eating more and drinking some and we have been able to keep him hydrated using his g-tube at a higher feeding rate because the vincristine isn't slowing down his intestines like it has in the past. This means that we are able to give James long breaks without using the g-tube (less pressure on the site) and helps with healing. Finally, we do think that the prednisone MAY have helped, but if the other things hadn't happened the way they did, we would have likely been in the same situation as in the past with eroding (based on what we saw earlier in the week).

We have enjoyed a slew of old movies from our old-movie collecting neighbors so that James could spend a lot of time resting on the couch.

We continue to be so grateful for your prayers and concern for us and for James. The Lord bless y'all real good!

Love, Stephanie

Wednesday, May 28, 2008

Oh, me, of little faith

Well, we are still home, PTL!

Monday night, it was clear that James' g-tube site was eroding. Hannah, Vern and I figured it was 'just a matter of time' again. And it still may be... but Vern said on Tuesday morning that he wanted us to get James seen soon. Tuesday preferably, Wednesday at the latest. I tried to get things worked out for yesterday and by the end of the day, his g-tube site didn't look any worse to me than it had in the morning.

This morning, PTL, it actually looked better in most regards. So we will see how it looks by the end of the day (we do check it during the day, so far no change from this morning.)

In addition to the good news that we are still home, James has had two very good eating days in a row. Unusual for him, but perhaps attributable to being on steroids. No matter how he gets to eating more of what he needs, at least he is practicing, and that is a very helpful thing. Yesterday, he drank about 8 ounces all by himself, today he isn't drinking so much. He is liking cheese melted on Wasa type crackers, egg yolks (poached to pudding like consistency and well-salted, thank-you-very-much!)

Of course, you can see my lack of faith in the packed and ready to go suitcases sitting in the kitchen. God is so good to us. All the time.

Gratefully,

Stephanie

Friday, May 23, 2008

James, walking with hair

These were taken earlier this week before chemo... Doesn't he look great with hair? :*)...




He is such a BOY!

Love, Stephanie
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