It seems like forever since I have journaled here, though I have thought about it a lot. Not long ago I was telling my mom that I was just at a point where I could do it or I could write about it. And the obvious choice was doing. So we have been doing a good deal and the Lord has been mercifully blessing.
Thursday Hannah and I took James to Atlanta for his spinal tap with IV methotrexate and vincristine. We are so grateful to all who prayed for us... I know you are still praying and we are very grateful for that too! Several folks let us know they were praying much even though they couldn't sign up for a time slot. The time is not so important as the praying and the goal is just to pray extra and especially fervently to show the Lord we are serious about our desire to see James well. A sacrifice of praise and other things, as it were.
Our drive to Atlanta was pretty uneventful (although we were a little late--they factor that into their schedule and it didn't hold anyone up). There was plenty of parking (a miracle from our view ;*)). And James didn't seem to have any trouble being hungry although he had been NPO (nothing by mouth--no food or drink) since 4 in the morning.
He had some oral versed (a sedative) and his spinal tap was uneventful. We had some trouble getting a good vein for the vincristine--such are the perils of being NPO before a procedure--but finally one of the nurses got a good vein and by then, James was done being horizontal following the spinal tap. This was the first time he didn't fall asleep! James'counts had actually improved since last week--ANC nearly 2200; Hgb 11.9 (maybe due to mild dehydration).
He did vomit some at the clinic and more on the way home. Thankfully it wasn't a lot and it was only twice, but it surprised all of us--probably James mostly. It was a little disconcerting, but nothing a little I-C-E-C-R-E-A-M couldn't settle. He did finally get a good nap on the way home and once we arrived home, he was still a little loopy and seemed to lack some muscle control.
This morning, however, he was raring to go and hasn't missed much all day today. To me, he still seems just a little off in the muscle control department. But I think it is a mom-thing and not something readily apparent to folks who don't study his motor control!
Stacy, our nurse practitioner, reminded me to take special note of James' mobility during the next while. This is the first vincristine James has had being so active and walking. Vincristine affects the nerve cells and it can often look like it is affecting muscles. She just said to keep an eye on him for his safety and to let them know how it seems to affect him.
James has had three doses of his new steroids (prednisone) and so far is doing just fine. We are keeping a close eye on his g-tube and hoping we won't be making a trip to Atlanta before our next scheduled office visit on June 12th.
In other little news around here: The Mothers' Day storm knocked out our power and we enjoyed a very quiet day at home. Some of the tornadoes hit near here (within 20 miles) and so we had no church. One of the ladies from church had significant damage to her home and barn, but she, her daughter and all their critters are safe. The insurance adjuster comes tomorrow--pray he would deal justly.
While cleaning up from the storm, Vern picked up a whopper poison ivy rash. It is getting better, but something else is coming up behind it... some sort of dermatitis, so we need to get him looked at.
We have kittens--2 mamas, 8 babies. They're really cute and it looks like some will be great, active mousers. Anyone know someone who'd like one (or more). The first batch of 3 will be 8 weeks old June 2. Their momma has already litter box trained them and they can be indoor, outdoor or both.
Vern's last day of school with students was today. Two more days of post-planning next week, then summer break (except for a three-day class). He also finished his first online college course-- a good experience overall.
Our garden is doing well, although with warmer temps come more bugs and some disease, so we are spraying some. We are curious to see how our potatoes fare. We dug up under one plant to get new potatoes and there wasn't much. Maybe we will have all leaves. Some here have had great success with potatoes and others not. The Lord really blessed our cabbage, peas and lettuce. We have agreed we need to plant LOTS more peas and broccoli in fall. We have picked some summer squash and are watching the corn (which is about ankle high), beans, tomatoes, little watermelons, cukes, peppers and eggplants.
The chickens are over on friends' land--150+ meat birds. They have about four weeks til they cool off in the freezer and they are doing MUCH better than last year. The children and I enjoy going over to chore and seeing how quickly we can move, feed and water them. We've also enjoyed picking some wild blackberries when we can. We are looking into alternative feed options to baat rising feed and gas costs.
The weather promises to be warming up here--we've had some wonderfully late cool weather up til now. With the warming weather, we will, more than likely, be spending more quiet time inside staying cool and trying not to make the house too warm! Time to catch up on some academics and some blogging, Lord willing!
Thank you again for praying with us for James. God is good all the time!
Love, Stephanie
One Big Adventure
An opportunity to log in some of the thoughts and activities of our homeschooling family of eight. We love books and good food and aspire to a Christ-centered, multi-generational, agrarian life.
An opportunity to log in some of the thoughts and activities of our homeschooling family of eight. We love books and good food and aspire to a Christ-centered, multi-generational, agrarian life.
Friday, May 23, 2008
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